Post-Transplant Lymphoproliferative Disorder (PTLD)

Our mission is to raise awareness and provide assistance to individuals and families affected by Post-Transplant Lymphoproliferative Disorder (PTLD). We are dedicated to improving the quality of life for transplant recipients and striving for better outcomes.

About PTLD:

PTLD is a serious condition that can occur after solid organ or hematopoietic stem cell transplantation. It involves the uncontrolled growth of lymphoid cells, triggered by the reactivation of the Epstein-Barr virus (EBV). PTLD can range from benign early lesions to aggressive lymphomas, requiring specialized care and treatment.

What We Do:

  • Patient Support: We offer a range of support services to individuals and families affected by PTLD. This includes emotional support, information resources, guidance on accessing medical care, and financial assistance for those facing the burden of treatment expenses.
  • Awareness and Education: We strive to raise awareness about PTLD among the general public, healthcare professionals, and the transplant community. Through educational campaigns, community events, and online resources, we aim to increase knowledge about PTLD, early detection, and the importance of regular monitoring for transplant recipients.
  • Advocacy: We advocate for the needs and rights of PTLD patients. We work closely with policymakers, healthcare organizations, and transplant societies to ensure that PTLD receives the attention it deserves and that patients have access to the best possible care and support.

How You Can Help:

  • Donate: Your financial contribution can make a significant impact on the lives of PTLD patients. Donations go directly towards supporting patients and their families, and raising awareness. Every donation, no matter the size, brings us closer to our goals.
  • Volunteer: Join our dedicated team of volunteers and contribute your time, skills, and passion to help make a difference. We welcome individuals with diverse backgrounds and expertise, whether it’s organizing events, providing emotional support, or assisting with fundraising efforts.
  • Spread the Word: Help us raise awareness by sharing information about PTLD on social media, organizing community events, or simply starting a conversation with friends and family. Together, we can spread the message and create a supportive network for those affected by PTLD.
  • Corporate Partnerships: We invite businesses and organizations to partner with us and support our cause. By becoming a corporate sponsor, you demonstrate your commitment to corporate social responsibility and contribute to improving the lives of PTLD patients.

Join us in our mission to make a difference in the lives of PTLD patients and their families. Together, we can work towards a future where PTLD is better understood, effectively treated, and lives are saved.

Contact us today to learn more about how you can get involved, make a donation, or access our support services. Together, let’s bring hope and support to the PTLD community.